KNOWLEDGE AND PRACTICES OF FAMILY CAREGIVERS OF TERMINALLY ILL PATIENTS AT THE TAMALE REGIONAL HOSPITAL
DOI:
https://doi.org/10.53555/ephijse.v9i3.221Keywords:
FAMILY CAREGIVERS, TERMINALLY ILL PATIENTS, TAMALE REGIONAL HOSPITAL, health workers, palliative careAbstract
The goal of this study was to evaluate the knowledge of family Caregivers in caring for terminally ill sufferers, to assess the practices of household Caregivers in caring for terminally ill sufferers, to examine the factors affecting household Caregivers in caring for terminally ill sufferers at the Tamale Regional Hospital. The findings show that there is the need for a caregiver to be present and ready to offer help to the patients due to their inability to move. Terminally ill patients may mostly be immobile or incapable of performing basic life functions without external support. It appears from the engagement with respondents that, the latter have appreciable knowledge of the concept of palliative care and care for terminally ill patients. They understand the challenging situation of terminally ill patients and are equally aware of what constitutes care for the sufferer. Also, family caregiver showed evidence of knowledge of health workers role in palliative care. They indicated that health workers had a crucial role to play in giving palliative care to the terminally ill patient. Doctors had the responsibility of prescribing medications while nurses also educate relatives and caregivers on palliative care. More so, health workers assisted in the caring of patients by assisting caregivers to physically move patients. Caregivers who could not move their patients due to the latters weight had to be assisted by some health workers. The result also indicates health workers played a crucial role in caring for terminally ill patients, of which caregivers were aware. The study further found that the other effect of caring for terminally ill patients was financial demands. To overcome this burden, the study recommends that caregivers had to cut their expenditures and request financial support from relatives and friends as family support was also a mechanism used in coping with the burden of caring for terminally ill patients. Also, the Tamale Regional Hospital should incorporate the services of family caregivers in the care of terminally ill patients. Their competence would immensely contribute to the improvement in the health of terminally ill patients. Further, the Ministry of Health should develop policies that will lessen burden on family caregivers of patients suffering from terminal diseases.
References
. Alomele, B. (2017). Exploring The Wellbeing Of Family Caregivers Of Women With Advanced Breast Cancer A Study In The Accra Metropolis (Issue 2017). University Of Ghana Legon.
. Aoun, S. M., Kristjanson, L. J., Currow, D. C., & Hudson, P. L. (2005). Caregiving for the terminally ill: At what cost? Palliative Medicine, 19(7), 551–555. https://doi.org/10.1191/0269216305pm1053oa
. Becqué, Y. N., Rietjens, J. A. C., van Driel, A. G., van der Heide, A., & Witkamp, E. (2019). Nursing interventions to support family caregivers in end-of-life care at home: A systematic narrative review. International Journal of Nursing Studies, 97, 28–39. https://doi.org/10.1016/j.ijnurstu.2019.04.011
. DO, T. A. C. (2017). Ethical issues at the end of life. The Elderly: Legal and Ethical Issues in Healthcare Policy, 101(10), 163–184. https://doi.org/10.4324/9781315240046-17
. Eifert, E. K., Adams, R., Dudley, W., Perko, M., Eifert, E. K., Adams, R., Dudley, W., Perko, M., Eifert, E. K., Adams, R., Dudley, W., & Perko, M. (2015). Family Caregiver Identity : A Literature Review. American Journal of Health Education, 46(December), 357–367. https://doi.org/10.1080/19325037.2015.1099482
. Frau, S., Kananga, A. M., Kingolo, J. N., Kanyunyu, G. M., Zongwe, A. K. H., Tshilengi, A. N., & Ravinetto, R. (2021). Training on adequate use of opioid analgesics in West and Central Africa: a neglected step on the way to access to essential medicines? Journal of Pharmaceutical Policy and Practice, 14(1), 1–5. https://doi.org/10.1186/s40545-021-00388-7
. Gitlin, L. N., & Wolff, J. (2012). Family involvement in care transitions of older adults: What do we know and where do we go from here? Annual Review of Gerontology and Geriatrics, 31(1), 31–64. https://doi.org/10.1891/0198-8794.31.31
. Hutchinson, D., Ho, V., Dodd, M., Dawson, H. N., Zumwalt, A. C., & Colton, C. A. (2008). Human Facial Expressions as Adaptations:Evolutionary Questions in Facial Expression Research. 148(4), 825–832.
. Karnik, S., & Kanekar, A. (2016). Ethical issues surrounding end-of-life care: A narrative review. Healthcare (Switzerland), 4(2), 2–7. https://doi.org/10.3390/healthcare4020024
. Karunamuni, N., Imayama, I., & Goonetilleke, D. (2021). Pathways to well-being: Untangling the causal relationships among biopsychosocial variables. Social Science and Medicine, 272(February), 112846. ttps://doi.org/10.1016/J.Socscimed.2020.112846
. Kasper, J. D., Freedman, V. A., & Spillman, B. C. (2014). Disability And Care Needs Of Older Americans By Dementia Status: An Analysis of the 2011 National Health and Aging Trends Study (Issue April).
. Kimberly, M. (2019). Paving the Path for Family- Centered Design: A National Report on Family Caregiver Roles in Medical Product Development.
. Mangan, P. A., Taylor, K. L., Yabroff, K. R., Fleming, D. A., & Ingham, J. M. (2003). Caregiving near the end of life: unmet needs and potential solutions. Palliative & Supportive Care, 1(3), 247–259. https://doi.org/10.1017/s1478951503030414
. Mausbach, B. T., Patterson, T. L., Rabinowitz, Y. G., Grant, I., & Schulz, R. (2007). Depression and Distress Predict Time to Cardiovascular Disease in Dementia Caregivers. Health Psychology, 26(5), 539–544. https://doi.org/10.1037/0278-6133.26.5.539
. McCorkle, R., & Pasacreta, J. V. (2001). Enhancing caregiver outcomes in palliative care. Cancer Control, 8(1), 36–45. https://doi.org/10.1177/107327480100800106
. McDaniel, S. H., Campbell, T. L., Hepworth, J., & Lorenz, A. (2004). Family-oriented primary care (2nd ed.). http://eknygos.lsmuni.lt/springer/155/Contents and Front Matter.pdf
. McLennon, S. M., Bakas, T., Jessup, N. M., Habermann, B., & Weaver, M. T. (2014). Task difficulty and life changes among stroke family caregivers: Relationship to depressive symptoms. Archives of Physical Medicine and Rehabilitation, 95(12), 2484–2490. https://doi.org/10.1016/j.apmr.2014.04.028
. Miaskowski, C., Blyth, F., Nicosia, F., Haan, M., Keefe, F., Smith, A., & Ritchie, C. (2020). A biopsychosocial model of chronic pain for older adults. Pain Medicine (United States), 21(9), 1793–1805. https://doi.org/10.1093/PM/PNZ329
. Narcotics, I., & Board, C. (2020). Narcotic Drugs Stupéfiants Estupefacientes.
. National Coalition for Hospice and Palliative Care. (2018). Clinical practice guidelines for quality palliative care. In N. C. for H. and P. Care; (Ed.), The Kansas nurse (Vol. 4, Issue 9). National Consensus Project for Quality Palliative Care. https://doi.org/10.1542/peds.2014-0046
. National Quality Forum. (2006). A National Framework and Preferred Practices for Palliative and Hospice Care Quality. In National Quality Forum. https://www.qualityforum.org/Publications/2006/12/A_National_Framework_and_Preferred_Practices_for_Palliative_and_Hospice_Care_Quality.aspx
. Ornstein, K. A., Kelley, A. S., Bollens-Lund, E., & Wolff, J. L. (2017). A national profile of end-of-life caregiving in the United States. Health Affairs, 36(7), 1184–1192. https://doi.org/10.1377/hlthaff.2017.0134
. Payne, S. (2010). White paper on improving support for family carers in palliative care: part 1. European Journal of Palliative Care, 17(5), 238–245.
. Peacock, S. C., Hammond-Collins, K., & Forbes, D. A. (2014). The journey with dementia from the perspective of bereaved family caregivers: A qualitative descriptive study. BMC Nursing, 13(1), 1–10. https://doi.org/10.1186/s12912-014-0042-x
. Penrod, J., Hupcey, J. E., Baney, B. L., & Loeb, S. J. (2011). End-of-life caregiving trajectories. Clinical Nursing Research, 20(1), 7–24. https://doi.org/10.1177/1054773810384852
. Rome, R. B., Luminais, H. H., Bourgeois, D. A., & Blais, C. M. (2011). The role of palliative care at the end of life. Ochsner Journal, 11(4), 348–352.
. Rosino, M. (2016). ABC-X Model of Family Stress and Coping. Encyclopedia of Family Studies, 1–6. https://doi.org/10.1002/9781119085621.wbefs313
. Saniah, A., & Zainal, N. (2010). Anxiety, Depression and Coping Strategies in Breast Cancer Patients on Chemotherapy. Malaysian Journal Of Psychiatry, 19(2), 1–6.
. Schulz, R., Hebert, R. S., Dew, M. A., Brown, S. L., Scheier, M. F., Beach, S. R., Czaja, S. J., Martire, L. M., Coon, D., Langa, K. M., Gitlin, L. N., Stevens, A. B., & Nichols, L. (2007). Patient suffering and caregiver compassion: new opportunities for research, practice, and policy. The Gerontologist, 47(1), 4–13. https://doi.org/10.1093/geront/47.1.4
. Simon, C. B., Valencia, C., Coronado, R. A., Wu, S. S., Li, Z., Dai, Y., Farmer, K. W., Moser, M. M., Wright, T. W., Fillingim, R. B., & George, S. Z. (2020). Biopsychosocial Influences on Shoulder Pain: Analyzing the Temporal Ordering of Postoperative Recovery. Journal of Pain, 21(7–8), 808–819. https://doi.org/10.1016/j.jpain.2019.11.008
. Steinbock, B. (2005). The case for physician assisted suicide: not (yet) proven. J Med Ethics, 31, 235–241. https://doi.org/10.1136/jme.2003.005801
. Taylor, H. (2015). Legal and ethical issues in end of life care: implications for primary health care. Primary Health Care, 25(5), 34–41. https://doi.org/10.7748/phc.25.5.34.e1032
. Taylor, H. (2019). Legal issues in end-of-life care 3: difficult decisions. Nursing Times, 115(1), 36–39. http://proxy.lib.umich.edu/login?url=http://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=138703444&site=ehost-live&scope=site
. Thorns, A. (2010). Ethical and legal issues in end-of-life care. Clinical Medicine, Journal of the Royal College of Physicians of London, 10(3), 282–285. https://doi.org/10.7861/clinmedicine.10-3-282
. Triberti, S., Savioni, L., Sebri, V., & Pravettoni, G. (2019). eHealth for improving quality of life in breast cancer patients: A systematic review. Cancer Treatment Reviews, 74(May 2018), 1–14. https://doi.org/10.1016/j.ctrv.2019.01.003
. Whiting, C., Greene, R., Wittke, M., Wolff, J., Bouldin, E., Mcguire, L., & Schulz, R. (2018). From Insight to Advocacy; Addressing Family Caregiving as a National Public Health Issue. January, 20. http://www.caregiving.org/wp-content/uploads/2018/01/From-Insight-to-Advocacy_2017_FINAL.pdf
. World Health Organisation. (2018). WHO GUIDELINES FOR THE PHARMACOLOGICAL AND RADIOTHERAPEUTIC MANAGEMENT OF CANCER PAIN IN ADULTS AND ADOLESCENTS.
. World Health Organization. (2007). Cancer Control Palliative Care. Chest, 123(1 Suppl), 284S-311S. http://www.ncbi.nlm.nih.gov/pubmed/12527586
. Wu, M. P., Huang, S. J., & Tsao, L. I. (2020). The Life Experiences Among Primary Family Caregivers of Home-Based Palliative Care. American Journal of Hospice and Palliative Medicine, 37(10), 816–822. https://doi.org/10.1177/1049909120907601
